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10Episodes
Category: Society & Culture

The Staff Disability & Long Term Health Conditions Forum presents a series of recordings intended to raise awareness, champion inclusion and promote emerging diverse communities from all walks of life. Listening, Sharing, Caring.

October 20, 2021

A Roundtable Discussion On The NHS Disability Summit 2021

On this special episode we are having a roundtable discussion from our recent attendance of the NHS Disability Summit 2021 that took place just a few weeks ago

 

We are joined today by Kieranne Page, a Clinical Nurse Specialist in Sexual & Reproductive Health and also Sharon Hudswell, Assistant Service Manager for Medical Education - who are also the co-chairs of the Guys & St Thomas NHS Trust Staff Disability & Long Term Health Conditions Forum!

 

On this episode we play a few clips from some of the featured speakers from the Summit discussing many initiatives, desired policy changes, current research and also best practices and desires for the continued growth and support of the NHS with its endeavours to improve and identify many elements with NHS Staff working with disabilities and long term health conditions

 

This one is a feature length episode but we feel there is alot of useful information many will find very useful - as always, thanks for listening

 

TRANSCRIPTION FOR THIS EPISODE IS IN PROGRESS

 

If you are part of Guys and St Thomas Trust and want to know more about The Staff Disability & Long Term Health Conditions Forum.. or want support from the forum, please contact us via email

 

DisabilityForumLeadership@gstt.nhs.uk

 

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PLEASE FIND THE FOLLOWING LINKS SHARED BY THE SUMMIT

 

https://www.nhsemployers.org/disabilitysummit

 

Meet Amar Latif - "The blind guy who wants to show you the world"

https://youtu.be/6ZsIRgNXwgk

 

https://www.rcn.org.uk/get-help/member-support-services/peer-support-services

 

September 27, 2021

Experiencing and Understanding The Realities of Long Covid (With Sharon Hudswell)

On this recording we are joined by Sharon Hudswell, Assistant Service Manager of Medical Education

 

This time we delve into a discussion regarding living with and understanding the Long Term affects of Coronavirus which is now more commonly designated separately as 'Long Covid'

 

Sharon speaks on her experiences contracting Covid-19, managing her symptoms, explainging intersections in regards to also having long term health condition and how she empowers herself to manage her conditions whilst also giving advice to others

 

It was a really insightful conversation to have with Sharon on to get a true understanding of just how impactful long covid can be on others.. let alone others with underlying long term health conditions, we humbly thank Sharon for sharing her story, thoughts and lived experiences in such a difficult period 

 

Please do not hesitate to share your stories thoughts and ideas too - please check

the links below for more information

 

TRANSCRIPT LINK - COMING SOON

 

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If you are part of Guys and St Thomas Trust and want to know more about The Staff Disability & Long Term Health Conditions Forum.. or want support from the forum, please contact us via email

 

DisabilityForumLeadership@gstt.nhs.uk

 

For Podcast enquires you can email - j.kofi@nhs.net

 

 

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Please find below the links to articles / clips mentioned in this recording

 

 

Sky News Long Covid Video

 

https://www.youtube.com/watch?v=VDNCFCXg3Vg

 

 

Channel 5 Long Covid Video

 

https://www.youtube.com/watch?v=QB41J5aU9Ww

 

 

Long Covid NHS Page

 

https://www.nhs.uk/conditions/coronavirus-covid-19/long-term-effects-of-coronavirus-long-covid/

 

https://www.yourcovidrecovery.nhs.uk/what-is-covid-19/long-covid/

 

 

The Long Covid Organisation

 

https://www.longcovid.org/

 

August 26, 2021

Feedback #05: Championing Dyslexia Support

Welcome back to another editorial episode of FEEDBACK!

 

Our members and communities would like us to have a focus on Dyslexia ahead of Dyslexia awareness month in October and we are more than happy to oblige with Tips, Talks and a helpful guide that can be used to find assessment facilities here in the UK for diagnosing individuals who may have Dyslexia

 

Please look forward to our upcoming interviews with staff with lived experiences - until then please check out the following links highlighted during this conversation

 

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Transcript link here - COMING SOON

 

What is Dyslexia

https://youtu.be/zafiGBrFkRM

 

Tamara Thomas NHS - A Colleagues Story With Dyslexia
https://youtu.be/dEpJQKvVU4o

 

The British Dyslexia Association Assessment Guide

https://www.bdadyslexia.org.uk/services/assessments

 

Christian Boer  of dislexyfont.com
https://youtu.be/qVaeGOflF7w

https://www.dyslexiefont.com/en/typeface/

 

Dyslexia: The Superpower

https://youtu.be/AMrUxxmMz8g

 

...and tools mentioned in this podcast that can also help with Dyslexia

 

Dragon software has a very popular Dragon Dictation product, google has built in text to speech in the keyboard app GBOARD, MICROSOFT has added immersive reading in many of its applications as a reading feature, Grammarly.com, Speechify.com and the Reachdeck browser addon are exception tools that offer a free / preimum tiered approach for added support

 

July 29, 2021

Feedback #04: Voices in Autism / Aspergers Syndrome

On this recording we do a bit more of an editorial coverage episode - we are highlighting Voices in Autism / Aspergers Syndrome as this has been quite heavily requested in our forum meetings

 

We intend to follow up on this subject with guests / allies for the further support and education of Autism awareness but for now we have been forwarded some great content we want to share with our audience

 

This podcast only contained snippets of the longer conversations / talks - please find full links below 

 

PODCAST TRANSCRIPT -  https://archive.org/details/feedback-04

 

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01. World Autism Awareness: A Message from Claire Murdoch | NHS

 

https://youtu.be/ijLLSM5nDSI

 

02. Autism: Graeme's story | NHS

 

https://youtu.be/yKT3swmn_wc

 

03. Autism and Aspergers: 5 intriguing differences (YOU need to know)

 

https://youtu.be/0bACSPzN1xY

 

04. Women and Autism. Towards a Better Understanding | Sarai Pahla

 

https://youtu.be/_MA7o6FgPRU

 

05. Why Everything You Know About Autism Is Wrong | Jac den Houting

 

https://youtu.be/A1AUdaH-EPM

 

OTHER RESOURCES MENTIONED

 

NHS PAGE  -  https://www.nhs.uk/conditions/autism/

 

National Autism Society  -  https://www.autism.org.uk/

 

https://www.awarenessdays.com/

 

 

http://www.national-awareness-days.com/

 

 

 

https://www.pat.nhs.uk/working-for-us/Equality/Resources/EDI%20-%20Interactive%20Calendar%202021.pdf

 

 

https://www.nhsemployers.org/events/calendar-national-campaigns

 

 

Email address for the podcast en quires: j.kofi@nhs.net

 

To find out more information about the staff disability and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk

 

Thank you for your continued support, please like and share our content with your communities and let us continue to promote, learn and uplift from each other!

June 24, 2021

Spotlight #03: Working & Dealing With Severe Migraines (A Colleagues Story)

Today we are joined by a member of staff from Guys & St Thomas hospital trust who is dealing with having chronic and severe long term migraines

 

Our guest prefers to remain anonymous while they discuss how they cope with constant headaches and migraines as a long term health condition

 

We discusses the physical and mental effects this condition can cause as well as the challenges / outcomes this has presented in their current role

 

We lastly get specific with medicines involved to help control these conditions, new and promising prevention trials and even a charity that can help others in similar situations that may find such information helpful

 

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Please find below links / resources mentioned during this conversation

 

Podcast Transcription - https://archive.org/details/spotlight-3-migraines

 

The Headache Channel  (YouTube)

 

https://www.youtube.com/channel/UCWtLYWoWW5Teahm0Cwu_VIQ

 

The Migraine Trust Website

 

https://www.migrainetrust.org/

 

AJOVY & EMGALITY DETAILED INFORMATION FOR PATIENTS

 

https://www.nationalmigrainecentre.org.uk/migraine-and-headaches/migraine-and-headache-factsheets/cgrp-and-anti-cgrp-injections-for-the-prevention-of-migraine/

 

Email address for the podcast en quires: j.kofi@nhs.net

 

To find out more information about the staff disability and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk

 

Thank you for your continued support, please like and share our content with your communities and let us continue to promote, learn and uplift from each other!

May 9, 2021

Feedback #03: The Power of Staff Networks (With Cherron Inko-Tariah)

On this recording Cherron joins us to speak about her ongoing initiative of helping organizations execute and utilize the power of Staff Networks. Cherron talks about her book “The Incredible Power of Staff Networks” which is a very thorough guide on how to form, sustain and maintain a Staff Network as well as her further related efforts on the national ‘Staff Networks Day’ and much much more!

 

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Please find below links / resources mentioned during this conversation

 

Podcast Transcription - https://archive.org/details/feedback-03-transcription

 

https://nationaldayforstaffnetworks.co.uk

 

https://www.thepowerofstaffnetworks.co.uk/

 

https://www.thepowerofstaffnetworks.co.uk/online-store

 

POSN Youtube Channel

https://www.youtube.com/channel/UCpmHAOm1QZMupQi4ld7qx8A/featured

 

She's The Boss Interview - Female Entrepreneur Stories: Cherron Inko-Tariah

https://youtu.be/IwS8WUAjB5M

 

The Incredible Power of Staff Networks Amazon Book Link

https://www.amazon.co.uk/Incredible-Power-Staff-Networks/dp/191012561X

 

Twitter: @POSnetworks

 

Email for the giveaway - j.kofi@nhs.net - remember this giveaway is first come first claim!

 

To find out more information about the staff disability and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk

 

Thank you for your continued support, please like and share our content with your communities and let us continue to promote, learn and uplift from each other!

April 28, 2021

Feedback #02: The NHS Stammering Network (With Vaughan Parsons)

On this recording we have Vaughan Parsons - a research manager in the occupational health service for Guy’s and St Thomas NHS Trust. Today he discusses with us his work on the creation of a new Staff Network.

 

The NHS Stammering Network is an upcoming community we are very exited to support and see come int fruition. Vaughan talks about its development so far as well as his experiences, thoughts and research on Stammering

 

Please find below a copy of this podcast's transcript and also links to the highlighted points we want to signpost

 

Podcast Transcript - https://archive.org/details/feedback-02-transcripted

 

BBC Documentary - https://www.bbc.co.uk/iplayer/episode/m000t27y/i-cant-say-my-name-stammering-in-the-spotlight

 

BBC Documentary YouTube Link - https://youtu.be/HgskTBGqKq8

 

Follow Up Interview by Stamma - https://youtu.be/dcOo1gVgRVA

 

Stamma, the British Stammering Association - https://stamma.org

 

The NHS Stammering Network Website - https://nhsstammeringnetwork.uk

 

To find out more information about the staff disability and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk

 

February 17, 2021

Spotlight #02: Ramzeddine Goudjil - Essentia Apprentice Administrative Assistant

On this recording we have  Ramze, who shares his unique experience as a partially sighted employee. We discuss how he navigates life in general, gives us tips with the tools and software he uses within his role, talks about his experience as an apprentice within the trust  and how he keeps an overall positive attitude even under hardships and challenges

 

Transcript link here - https://archive.org/details/spotlight-02-ramze

 

Links also mentioned in this recording...

 

Metro Blind Sports - https://www.metroblindsport.org

 

For more information about the staff disability forum and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk

October 17, 2020

Spotlight #01: Jenny Hull - Pharmacy Business Support Manager / Staff Disability & Long Term Health Conditions Forum Chair

On this discussion Jenny shares her life experience with long term health conditions, overcoming various obstacles and her continuing positive strides within her overall career as well as the actual founding of our very own GSTT Staff Disability & Long Term Health Conditions Forum.

 

Transcript link here - https://archive.org/details/spotlight-01

 

For  more information about the staff disability forum and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk

 

October 1, 2020

Feedback #01: Disability Awareness Week 2020

On this recording we have a focused discussion on Disability Disclosure / Disability Awareness Week 2020

 

Please find the links to the transcript and featured / signposted content below

 

Podcast Transcript -  https://archive.org/details/feedback-01-transcription

 

Understanding Disability Disclosure / Awareness Video - https://youtu.be/NJ5nhpBzTao

 

An interesting brochure on Disability Disclosure / Awareness - 

https://www.ucu.org.uk/media/5445/Disclosing-a-disability-UCU-guidance/pdf/Disclosing_a_disability.pdf

 

For  more information about the staff disability forum and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk